Tuesday 28 April 2015

Helping Laya - Help raise £25,000 for a new wheelchair for Laya!


 A sweet little girl named Laya Zenonos was diagnosed with Spinal Muscular Atrophy Type 1 (SMA 1) when she was only 8 months old. The parents were utterly devastated and completely uncertain about the future as SMA is a life limiting condition.

  Laya is very special as the vast majority of kids with SMA 1 don’t live beyond the age of 1-2 years.  Despite Laya’s condition and the many, MANY challenges that come with living with SMA, Laya has brought those around her immense joy. Her brother and sister adore her too. Laya’s brain is completely unaffected by her condition and so she is very bright, loves to sing, read, tell stories and chat!  Laya is however profoundly disabled, despite this she was determined to go to school like her big sister, so she overcame the challenges and with overwhelming support from the school and her professionals she attends Raglan Infants School. 

 Laya is very special as the vast majority of kids with SMA 1 don’t live beyond the age of 1-2 years.  Despite Laya’s condition and the many, MANY challenges that come with living with SMA, Laya has brought those around her immense joy. Her brother and sister adore her too. Laya’s brain is completely unaffected by her condition and so she is very bright, loves to sing, read, tell stories and chat!  Laya is however profoundly disabled, despite this she was determined to go to school like her big sister, so she overcame the challenges and with overwhelming support from the school and her professionals she attends Raglan Infants School. 

A year ago, her current wheelchair, Wizzy Bug, gave Laya her first taste of independence but this is a pre-school wheelchair for toddlers. Laya is almost 5 and a Snap Dragon wheelchair will completely open up her world and enable her to do so much more!

 We really believe that with the right therapy, the right stimulation and the right support (and a lot of love) Laya will continue to thrive and love life.  This is why we desperately want to raise the money to buy her a Snap Dragon wheelchair. 

 Many different fund raisers have been organised in support of Laya. Each and every event has helped raise money towards the wheelchair and also brought us all closer to friends as we all strive to attain the same goal. From a half Marathon being run in May to bake sales, every event has been a success and will be as we bring this dream a reality. Please help us raise the money by visiting www.helpinglaya.org and donating even just a small amount just to give her the opportunity to live life and enjoy it to the full despite what challenges lie ahead.

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If you would like to donate or get involved in a fundraising event to help raise funds for Laya please visit: www.helpinglaya.org or the Facebook page www.facebook.com/helpinglaya.

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